|
|
|
Rank: Advanced Member
Groups: Registered
Joined: 1/21/2010
Posts: 69
|
my speacilist is awefull left me with no meds got pain killers from doc .even told specialist bad shoulder. his words nothing i can do about that changed specilist no appointment till may im on back to work esa in pain what do ido
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
|
hi Lorraine,
ohh my how can you be left with no meds other than Painkillers.
can you contact your Rheumy Nurse ... i have a direct number and get to talk to her that day or within 24 hours.
if it were me i would make an appointment with my GP and get him on the case for me as i know he's a great support. although i know that wouldn't be the quickest route.
i know others will suggest other options for you, but i've never had to use them.
really hope you can get help soon,
feel for you.
Suzanne x
P.S. also a phone call to NRAS Helpline might help as to where to go next.
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
|
Hello Lorraine
I've often wondered how you were getting on.
You can't be left with no medication other that pain killers. I would see your GP and ask to be sent for an urgent appointment with a consultant. You've been diagnosed with RA and need something. At my hospital we have three consultants, hope there is more that one at yours. If not ask to be referred to another hospital.
Hope something gets sorted soon.
Keep in touch and tell us what happens.
Paula x
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
|
Tiime to ring NRAS, Lorraine. This is disgraceful. Hope you soon start to feel better.
Love Jeanxx
x
|
|
|
|
Rank: Advanced Member
Groups: Registered
Joined: 1/21/2010
Posts: 69
|
are rhmumy nurse died .she was brillant.i dont think shes been replaced
|
|
|
|
Rank: Advanced Member
Groups: Registered
Joined: 1/21/2010
Posts: 69
|
hello paula c nice to hear from you again
|
|
|
|
Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
|
Hi Lorraine Sorry to hear you are having such problems. Three ways to go with this:- 1. Make urgent appointment with your GP, he could prescribe anti inflammatories, oral steroids or a depo-medrone injection. 2. Phone the PALS office at your local hospital. They should be able to get you a fast appointment with a rheumatologist, 3. Phone NRAS who I'm sure will support you in obtaining the treatment you need. Good luck. Hope you feel better soon Lyn x
|
|
|
|
Rank: Advanced Member
Groups: Registered
Joined: 1/21/2010
Posts: 69
|
|
|
|
|
Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
|
Hi Lorraine - what a horrible time you have had. I had to change Rheumys after the 1st one reduced my dose of Plaquenil and refused any other treatment even though my blood markers kept rising. Just wondering where you live Lorraine? Hope you get proper treatment soon XX Ailsa
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
|
Thinking of you this does seem extraordinary bad.
Lynn advice is concise and correct
Good luck and let us know how you do
Rose x
|
|
|
|
Rank: Advanced Member
Groups: Registered
Joined: 1/21/2010
Posts: 69
|
i live near colchester want to start a group up
|
|
|
|
Rank: Member
Groups: Registered
Joined: 2/11/2010
Posts: 19
Location: chepstow wales
|
HI LORRAINE I FEEL SO SORRY FOR YOU IT IS HARD ENOUGH COPEING WITH RA BUT NOT HAVEING THE SUPORT YOU
NEED DOESNT BEAR THINKING ABOUT!!!!!!! I AM SURE AS LYN SAYS GO TO YOUR DOCTOR AND THEY WILL SORT YOU OUT WITH STEROIDS OR SOMETHING TO TIED YOU OVER-----I FEEL SO LUCKY WITH THE MEDICAL SUPORT I HAVE I DO HOPE YOU CAN SORT THIS OUT ASP GOOD LUCK THINKING OF YOU KATE
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
|
Hi Lorraine,
Sorry to hear you have been left without drugs. Why did you have to stop them?
I hope your GP can sort this out for you.
Love, Doreen xx
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 6/16/2010 Posts: 39 Location: Edinburgh
|
hi lorraine, I've had supply problems before but I've never been left without any meds. that is disgracefull. definately go see the GP, they can be really helpfull at chasing up hospital appointments and suchlike. I'll keep my fingers crossed that you get something soon Laura 
|
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
|
you can always check yourself into A and E and refuse to move until you are treated by a rheumatologist... go for a weekday morning....
otherwise its GP and ringing rheumatology....
Jenni xxhow to be a velvet bulldoser
|
|
|
|
|
|
|
